Thanks Concussed Scientist for your response.

Things have improved for me too so there is hope for every one else. Progress has been much slower than expected (it has been nearly two years since I first posted here). Things don't change much from day to day for me either but if I look back in 3 months or 6 month steps then I can see that my condition has improved and there are activities I can take part in and enjoy.

I'm still very vulnerable and intense activity can trigger my symptoms again and I continuously try to find what my limit is.

Keeping a diary of my symptoms is useful and it helps me see objectively if my condition is changing. Apart from that I am not having any treatment, I am just waiting for the day my life will return to "normal" again avoiding anything such as very active sports which may trigger my symptoms again.The good news is that over the last two years, it has become more "normal".

Wishing you all good health too.