Member
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Join Date: Mar 2009
Location: Ohio
Posts: 310
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Member
Join Date: Mar 2009
Location: Ohio
Posts: 310
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Hello Nancy,
The emotional roller coaster is almost as bad as the pain. I have full body RSD (9 years).
In the beginning I was a mess. I was trying to keep life as normal as possible and not let anyone (even my husband) know how awful the pain was. I wasn't fooling anyone.
I thought about suicide (spelling ?) and how I would do it. I started to the garage and I stopped got down on my knees and asked God to help. He is the only sure thing in this life of RSD. Every night I ask for his peace that passes all understanding so I can sleep and every morning I ask for the energy and strength to face the day. He never fails me.
God has sent the people into my life that help me manage this awful pain.
RSD is frustrating. It's important to have the right doctors, medication and exercise. I like water walking and swimming at the Y. Dr. S is Philly told me the best thing I do for myself is seeing a Chiropractor. Finding the right doctors is a challenge as is the medication that will work for you. It can be done just have patience. Once I accepted my condition and stopped looking for a cure around every corner. It was so much easier to live.
Don't allow RSD to define you as a person. It's OK to cry sometimes don't spend to much energy on crying. God gives me the peace I need.
Take care,
Sherrie
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