Hello
You do have reason to worry. Worry and stress is not good for us. Let us try to relieve some of that worry.
My tip would be to contact your and her US Congressperson. By letter, with her SS #, address, Date of Birth, diagnoses and your heartfelt concerns about your daughter's condition. Ask them to take a look into her social security claim, help her as much as they can, and keep her updated with what's going on with her claim.
In Kentucky we have our local state run health department. Call them for qualification quidelines for home health services, meals on wheels, or other services they may offer in your state and county. She may need a social worker on her case, but they also make recommendations to the court if they deem her incapable of caring for herself and her kids.
With your efforts, I'm sure she'll find the care she needs.