Hello all! Talked to my neuro on Monday and he FINALLY agreed to allow me to have a port put in - either that or a shunt. He plans on me having the plasma exchange every 6 weeks for quite some time - no idea how long right now.......but being able to go back down on pred is always a good thing! I'd love to lose those pesky 40 lbs.....lol!

Just wish I could have had this done sooner. Dr. I also mentioned (for the first time) that MG is a "chronic" disease - well....duh! I think HE thought I'd go into remission by now, so he's trying to warn me............

Hope this finds all of you happy and strong! Let;s remember to keep icknerd in our prayers - she has her thymectomy scheduled for tomorrow!

Big hugs!
Erin