Thanks to all for responding! since my last post, I have requested the med notes from the meeting with these new pain drs. I am anxious to see what they have said in the records.
Dejavu: I went to this appt at the "university" on the suggestion of my primary dr. My pain management dr I have is ok and is with another hospital - but when I go to him, he just asks me how I feel and fills out the prescription bottles. I need to get my leg moving - not just take pain pills! He just doesnt seem to be too interested any more in this issue. Maybe its partly my fault for not demanding care in that area, but I have brought it up to him with not much response back. Anyway, when I brought this up to my primary care dr - she suggested I see these drs at the university. When I went to the meeting with these new drs at the university, I mentioned my existing pain management dr with the other hospital to them, and told them I was not there to get pain meds, instead I was concerned about getting my leg to move. My RSD is not always red, but at times will turn deep red/purple color, besides being swollen all the time. It feels like a deep sunburn if someone touches it, and I can't sleep with my good leg touching it.
I just felt it very odd the way these University drs were acting, so secretly as if they felt I was trying to bluff them...?? Like you have all said, it if doesn't feel right - turn away. I don't intend on going ahead with this procedure unless they can meet with me again and answer my questions to a complete extent. Pete - I did ask the drs to include with the med records why they thought this was not RSD. They stated this goes against their policy in how they treat the patient questionable with RSD - they don't want to give the patient the "edge" in knowing how one with RSD would respond to their treatment.???? I'm thinking I might bring up my RSD to my rheumatologist that treats my AS and see what he thinks... No wonder depression goes with this disease!