Quote:
Originally Posted by Av8rgirl
It's routine for me to have the IVSM mixed with D5W.  I don't tolerate it mixed with saline. D5W is Dextrose and/or sugar water  . It has reduced the metallic taste and cut down on the damage to what's left of my veins.  The nursing staff says it's become quite common unless the patient is diabetic or has a family history of diabetes. |
That explains a lot. I wasnt getting the steroid flavor as bad as I thought I was going to do after reading about other people's experiences.
I've only had to hit the Cinnamon Altoids a couple of times.
I was told to eat some comfort foods, and discovered monday that garlic toast worked really well for me covering up the taste of solumdrol. I'd rather have the taste (and smell) of garlic wafting around me than have the taste of solumedrol in my mouth.
I'm going to have something more substantial today for lunch during my last infusion, I just have to decide what to eat.
I woke up this morning, and before turning on the lights in my room, I was thinking that the steroids were starting to work and the double vision was going away, but then I realized after I turned on the lights and nearly fell over from the blast of vertigo the light gave me, that I still had the double vision. (light affects it...more contrast, the worse the diplopia gets)
The diplopia seems to change hourly for me. I like to keep checking. Sometimes it's not so bad, sometimes I keep that left eye closed or covered constantly. If I'm in a small room, where the walls arent far away, or when I'm eating, the double vision doesnt bother me much, or at all. The closer something is to me, I dont notice the diplopia. It's distance vision that seems to be getting abused by the diplopia.
I just hope the steroids are working for it. I can tell that it's helping all my other problems. I could find my right foot this morning. My left index finger is still tingly, but not feeling as tingly as it has for the past 8 or 9 months. I'm feeling better than I had been. Except for the vertigo from the diplopia, I'm feeling better. I think tho, that when I'm typing, I'm having more "dyslexic moments" and I dont quite understand that part. Maybe it has something to do with the tinglies not being as bad in my fingers on the left hand?
I just want to be able to see normally again! I'm tired of teenagers laughing at the stupid patch on my glasses. (I went off on two girls in Michael's last night when I was buying some yarn)