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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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Ron's study group
Ron- That's the first time that I had seen their website. I think this quote is the smartest statement I've ever read about PD research:
"Conventional approaches may have limited potential: major advances are not made on bandwagons, but by thinking the unthinkable, not accepting dogma, and reviewing the obvious."
Why not ask them if they'd be interested in working with some of us to develop some sort web based tests to add to what they are doing with you? Webcams are cheap now, so it could have video input as well. In fact, since they are relying heavily on video already, it could serve as the "Rosetta Stone" to merge the web data into their existing database if we set it up right. And it wouldn't cost them anything. Heck, we could make a little noise about how clever the approach is and attract a little money.....
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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