Hi Linkaye, It was a Ortho Hand Specialist that diagnosed me. I was misdiagnosed as having RA, even though didn't have evidence in blood test. Having RSD and MS is not all that uncommon. And Bone loss is definetly common. A nuclear med test for bone loss is one of the tests for positive proof of RSD. Are you saying the University Drs gave a positive diagnosis of RSD? I've read RSD reports from Drs. from SEATTLE. I know there are good RSD Doctors there.
There are still so many Drs. out thre that don't want to recognize or treat RSD. But the annual RSDSA meeting I attended this spring here in Scottsdale AZ said there are 50,000 new cases every year.
I wasn't diagnosed for 4 years-flew back to Oregon to a Sports Injury Group. The Hand Dr. diagnosed me in 1 minute, followed up by nuclear med test-positive. Ordered a Tens United and Started Physical Therapy next day. I had lot s psycial therapy and massage therapy. swimming. I am so grateful I've gone thru all of that-though very painful. I have full body RSD now, but thru having a great psychiatrist, neurologist, pharmacologist-3 in 1 Dr. I am the best health I had in 13 years. i still have really tough times, but thru neurotalk and therapy I am the best I can be right now. Still need to work on exercise, but am determined to get more active.
A good way to get a good RSD Dr. is to find a local support group and ask what Dr. they have. You can contact RSDSA and put in your zip code and they will give you a name and phone number of a contact person. There should be several in Seattle area.
The meetings are wonderful and so informative. They often have Drs. Pharmacists, physical therapists, as speakers.,
If I can find the Seattle Dr. that wrote about RSD, I PM you his same and hospital.
If you have RSD, you need RSD treatment! Your 'other' drs. don't have acceptable reasons in my opinion, of proof that you don't have RSD. Hang in there and don't give up.
Not that you want RSD, but you do want a correct diagnosis.
I lived in Olympia and Port Townsend, yes it's Rainy. We live in Arizona,115 degrees today. The west coast is so beautiful, but too rainy for us. The Dr. group I went to is in Eugene, Oregon where I was born and raised. It's a University town, where they always have good sports injury drs. like Seattle.
Don't give up, you'll get answers that are medically verified. Take care,loretta