Hi there; thought I would answer a couple of your questions.
Daniella - My orthopedic surgeon was the first that thought I could have RSD from the symptoms and he felt there was nothing more he could do. So he referred me to the pain specialist. After a complete exam by the Pain specialist, and reviewing my records, he gave a clinical diagnoses of RSD. After that, I had 5 or 6 lumbar blocks which did help relieve the pain, only for about 5 hours each, but enough time to get to the Physical therepist. My problem now is that my husband's insurance only covers about 1500.00 per year for PT, which is about 5 or 6 visits. I try to do on my own, but get discouraged I guess too easily. Now with the MS and AS, my balance and pain is increased so it is even harder. I went to the University dr in hopes they could help me with the movement of my leg and plus I am having more pain behind my knee replacement. My pain dr (at another hospital) just seems to want to write the pain prescriptions, but I know I need more than that. I do have a neurologist, but he is for my MS.
Loretta if you could find the name of the dr in seattle, that would be wonderful. I have looked into RSD meetings around - but not energetically - and guess I should as it would probably help. Thanks again for all your responses. It does help to know that other people really do know how you feel!