Thread: FINALLY getting my port or shunt!
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Old 07-16-2009, 05:11 AM
rach73 rach73 is offline
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
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Quote:
Originally Posted by erinhermes View Post
Hey Hon! How are YOU feeling today? Are YOU feeling better?

I'm feeling pretty good - Devon is with his aunt and uncle, so tonight I am going to bed waaaaaay early! He is a night owl (like I used to be) so he wants to talk at about 2:30 every morning.....LOL!

If I get the port, it will go in y chest (between my boobs). If I get the shunt, it will go in my arm. Either way, it is going to be GREAT! No more sticks! I am so happy!

Can;t wait to hear from you!
Love,
ERin
Hi Erin,
Im still very up and down almost hour by hour. Im certainly not the worst Ive ever been. Its just my muscles seem to be constantly fatigued instead of me getting some respite. Mestinon seems to be only lasting around 2 hours before I can feel everything becoming sluggish again.

Ive asked my consultant for all my test results but thats yet to elicit a response.

Ive heard nothing from the 4 people I have contacted and will now ask for a direct referal. It seems so much easier in the states to see different people here everything has to be done by referal.

Take care,
Love
Rach
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