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Old 07-16-2009, 02:45 PM
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Dejibo Dejibo is offline
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Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
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MY MS MD and I have been talking. My copaxone seems to be causing me quite a bit of trouble. I have failed off of Betaseron due to liver enzyme increase that set a clinic record, and my MD is speaking of offering me a chance to get in TOUCH.

I must say I am more than a bit scared of the thoughts of it, but am a bit more willing to listen than in days gone by. I would need a port put in, as I have horrific access, and simply couldnt tolerate an IV once a month. Since Medicare is my primary now that the DH is retired, I worry about the cost being covered. I also worry about how it would make me feel.

I know this is a thread for those that are currently taking this med, but since I am being asked to consider it, I thought I would wander over and ask for your opinions. Can you tell me how you feel now that you personally have been taking it? Are you afraid of PML? do you have alot of side effects? Does this whole thing consume your day, or do you just forget about it till the next infusion day? What would I be able to expect from the TOUCH team?

Thank you
Dejibo
__________________
RRMS 3/26/07
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Betaseron 5/18/07
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Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
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