I am so worried as during last night the burning and stiffness in my ankles suddenly moved up into my lower legs to just below my knees. This has never happened in 14 years of PN. This morning the burning and stiffness has moved dropped down again towards the ankles although not all the way down.

Is this a progression of the disease? For the first time in 14 years I am really scared especially as I have the cardiac problem as well. I would really appreciate the experts’ advice.

Tony