 |
Senior Member
|
|
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
|
|
|
Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
|
Hi Rach!
Hey sweetie! I know what you mean -I'm taking my mestinon every 2 hours instead of 4 right now, but this heat is wearing me out! I thought I'd have more ENERGY @ 40 mgs of pred, but not quite yet!
Hope you feel better soon!
love,
Erin
Quote:
Originally Posted by rach73
Hi Erin,
Im still very up and down almost hour by hour. Im certainly not the worst Ive ever been. Its just my muscles seem to be constantly fatigued instead of me getting some respite. Mestinon seems to be only lasting around 2 hours before I can feel everything becoming sluggish again.
Ive asked my consultant for all my test results but thats yet to elicit a response.
Ive heard nothing from the 4 people I have contacted and will now ask for a direct referal. It seems so much easier in the states to see different people here everything has to be done by referal.
Take care,
Love
Rach |
__________________
Erin
.
|