Originally Posted by daniella

One of my neuros famous words was I don't know or the tests don't indicate. Anyhow can you go for another opinion? I have seen so many specialists and though I wish I knew the why behind all this I don't so now for me it is about pain control. As far as the anxiety I have gotten that too. I also have RSD and that is a huge thing they say with that. Anyhow my recent pain doc really said it in such a better way. He was working with me about pain meds and treatments like invasive but then also offered alternative. Anyhow with that he suggested a psych and said how key it is to cope and that a person who has been in pain like I have for 2.5 years can't not be effected mentally. He said it so that I did not feel my pain was in my head but that the pain does effect my head which in turn impacts my pain. Hope I am making sense.
What other docs have you seen the the neuro? What bloodwork and tests? I wonder if you have more then one condition going on. By the way my eyes are effected too. Mine is not auto immune but I wonder if you may have something like that going on. With the eyes,weak etc? Hang in there and don't give up hope