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Junior Member
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Join Date: Aug 2006
Location: Las Vegas, Baby!
Posts: 67
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Junior Member
Join Date: Aug 2006
Location: Las Vegas, Baby!
Posts: 67
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Query : Anyone with RA and Epilepsy
RA = Rheumatoid Arthritis (auto-immune disease)
I have had arthritis for over 30 years, Doctors have for YEARS been telling me it was osteoarthritis. Both my knee have been replaced with prothestics. I went thru bilateral carpel tunnel surgery 2 years ago with the repair of trigger fingers. But it was the removal of a snyovial mass from a ruptured tendon on my right thumb this past Nov. that I was finally tested for RA. I went off the chart.
My doc says I have had RA for a long time. DUH! Even though he replaced my last knee, he said it LOOKED like osteoarthritis. I am BEYOND anger that it's taken so long to find this out. I have been seeking treatment for the pain and stiffness for YEARS only to be told, "take asprin, motrin, live with it, it's all in your head, you'll just get addicted to pain killers, we can't kind anything wrong, come back if it keeps bothering you...blah,blah,blah" Now my hands and feet are a nightmare. It's like wearing lava gloves and socks and having someone pound on them with hammers. We won't even discuss the back, hip, neck, elbow pain or the dry eyes.
RA is an autoimmund disease. It affects many different parts of the body including organs. The brain is an organ which CAN be affected.
No one in my family has epilepsy, only me. Mine was sudden onset at age 47. I had ONE grand mal in the back yard watering my garden about 40 days after my first knee replacement. I have always felt that the seizure had something to do with that surgery. But now that I know about RA, I just wonder if the RA wasn't the real reason for the seizure.
I never had another grand mal, but have had felt the same fluttery feeling many times, that preceded the GM. Over the next 3 1/2 years, I experianced several complex particals and 1000's of simple particals. ( I have been seizure free for the past year and a half and completely off all AED's since Oct.) I tried about 10 - 15 AED's and the VNS implant as treatment but it was the added protein, iron, Zinc and B12 that got me seizure free. Go figure.
I have searched the internet and RA message boards and web sites for ANY connection of RA and SEIZURES, now I will ask any members who have RA and epilepsy....IS THERE A CONNECTION FOR YOU? Does your RA cause your seizures?
__________________
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"If you are going through h e l l, keep going."
(Sir Winston Churchill, 1874-1965)
C'est la vie!
Work like you don't need money, Love like you've never been hurt,
And dance like no one's watching.
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