Connie, Why the heck does this happen?!

What they should be doing is plasmapheresis. If he gets better, it's MG. If not, it's something else.

You guys have attorney general offices that can do things on an emergency basis, just like here in the U.S. Here is the Ontario site.

http://www.attorneygeneral.jus.gov.o...t/overview.asp

Here's Alberta's AG:

http://www.justice.gov.ab.ca/ministers/jag.aspx

They need to know that this man's life is in jeopardy and their action is urgent. I couldn't find that you guys have medical boards like we do.

When in doubt, get a lawyer for an hour or two. That'll get those doctors off their butts.

First, it is VERY dangerous to start someone on steroids while in a severe MG crisis. Second, have they taken him off of steroids too? He could then be in an adrenal crisis!!! Have they tested his cortisol? Again, the "protocol" is to do plasmapheresis.

Second, Have they checked his arterial blood gases? What are his O2 stats? I know, you probably don't have these answers but this is what the caregivers of this man need to ask.

Also, have they done the MuSK antibodies too?

Someone should ask these doctors if they want this man to die and to have a lawsuit as a result of it because they didn't treat him appropriately. Worse yet, they treated him for MG, took that treatment away and he got worse.

Yes, ALS can temporarily get better on Mestinon but not over time. I would ask what OBJECTIVE evidence they are using to say it is ALS. EMG's?

This is crazy doctoring and I hope this man gets help soon. I'm sorry I can't help more. That was very sweet of you, Connie, to help out.

Annie