Thank you so much for all the info! I've passed the info along to his son, do hope he gets well soon and hope the docs start doing the right things.

I too find it appalling that this is happening in the hospital, and in the ICU. They have tests to verify if it is MG and they're not. According to the caregiver, his son, the patient has had EMGs done, the first two were clean, the latest one seemed to have pointed towards MG but yet they still persisted in taking him off the Mestinon. Requests to start the Mestinon again were rejected by the docs. They have no tests to prove that its ALS, the reason for taking him off the Mestinon was simply cos they only saw SLOW PROGRESS. Worse still, the doctors keep changing so they aren't even sure who is the doctor in charge. The whole family's stressed out, seeing the patient finally getting better and now deteriorating rapidly, yet they can't do anything.

Am really hoping that the family will find strength to really get the doctors to give them some answers.

Its really sweet of you to help too Annie! Will keep you updatedonce I hear from his son.