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Old 07-20-2009, 10:23 AM
littlespringshowers littlespringshowers is offline
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Join Date: Jun 2007
Location: England
Posts: 5
15 yr Member
littlespringshowers littlespringshowers is offline
New Member
 
Join Date: Jun 2007
Location: England
Posts: 5
15 yr Member
Default me too!

Hi, I also have a daughter with Spino cerebellar ataxia and she is displaying very similar symptoms to your daughter. She is 12 now and we realised there was a problem when she ws 18 months and not walking. She did walk at 23 months but was a drunk toddler who kept falling down and that never changed and is the same now she is 12.
She has had MRI's and her Cerebellum is atrophying (Shrinking) and her wobbles as we call them are getting worse. She too has no reflexes in her ankles.
It is tough for her as she is fast developing in to a young lady and to keep falling is embarrassing for her and frustrating because she tries to do sporty things but just can't.
I can really sympathise for you with your daughter.
I am really happy to keep in touch as being a mother of a child affected in this way is so hard, especially as there is little they can do.
Ella takes Co-Enzyme Q10 which is reported to help slow down the shrinkage of the cerebellam and also Gabapentin or Neurontin to try and prevent as much of the neuro pathic pain she gets.
I would love to hear from you. Maybe we can help each other.
Take care
april
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