Thread: Vitamin doseage
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Old 07-20-2009, 03:12 PM
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Marty SLC Marty SLC is offline
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Join Date: Jun 2009
Location: South Jordan Ut
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Marty SLC Marty SLC is offline
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Join Date: Jun 2009
Location: South Jordan Ut
Posts: 248
15 yr Member
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Quote:
Originally Posted by Hope15 View Post
Hi Marty, I'm just curious. I see you have been ideopathic for 12 years? How did your PN start and what parts of the body are affected? Any theories? I am also trying to get my supplement regime straightened out...
Hi Hope,
I have tried supplements before but not long enough and I didn't put my all into it like my overall health of exercise, food, supplements, weight, fun etc.. So I'm going to give it 100 percent for one year to see if it's possible to make gains after so many years.

My history is long and complicated but I will be to the point. 13 years ago I had to change positions with the company and so I went from sitting all day to standing all day.

- First my arches started to burn while standing for long periods. Went to a Podiatrist because I have problematic feet anyway and my thought was it was a mechanical thing. Since then I've had 3 surgeries on my feet. 2 were tarsal tunnel syndrome releases and one for a heel spur all of which had nothing to do with my problematic feet and everything to do with PN. If you do a search on the various message boards you will find many who have had TTS release performed in an effort to relief the pain and burning. Unfortunatly for me one of the realease triggered RLDS and it taken 8 years for me to get this under control.

- Second dull aching pain in my feet that radiated up my legs. After the arches started to burn I started to get this and it has increased. It's a hard thing to deal with. Then the pain spread to my legs and to what feels like my leg bones.

- Third the burning spread from my feet to my legs up to my groin.

- Forth the buring spread to my hands and face. (Not bad enough yet to cause me to much grief but it's increasing with time).

- Fith twitching mussles all over but not often enough to be to much of a bother.
(I have to say though when this started in my legs and arms it was most disconcerning) I freaked out! Now I have come to live with it knowing the pain and burning is a much harder thing to deal with.

- Sixth creepy crawly feelings.

- Seven total fatigue.

I have no theories at all.I tell folks that ask that I must have been poisoned or eat lead as a kid but really I don't have a clue. Well I kind of take that back. I wonder if it has anything to do with the fact that I drank tons (two 64ounes mugs a day) of diet coke and for a really long time. Like 20 years. It's the only thing I can think of. All that aspartame or something. Kind of like alcohol would do, cant be good for you. That's all I've done. No drugs, coffee, tea, cigarettes or anything. Maybe with all that coke in me all the time I couldn't absorb correctly. I wonder but really wouldn't say it's my theory. I guess it could be gluten but I haven't been tested. I'm really trying hard to be gluten free but it's really hard. To be a man that works means I have to make all my own gluten free food. All this is really expensive too. (That's probably why I gave up before, money). Your spouse has to be behind you 100% because it's a big burden. Didn't feel like I wanted to put her through it so I have just suffered.
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Marty
Idiopathic PN - diagnosed 1999
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