Carrie, I just read this and got tears in my eyes. For a couple of years now I have had swelling throughout my body - especially heavy on the left side and extremeties. About 6 months ago, I was diagnosed with "coxsackie disease" - also known as the "devils grip". Yes, it feels like the devils grip all right! I was a smoker (until 3 months) ago, developed double pneumonia and was hospitalized for 6 days. I do have emphyzema in the upper portions of both lungs. I also have "spongy" bulges on the top of my left shoulder and on the very top of my left shoulder, which now goes down into the top part of my armpit. They keep getting bigger - the doctor told me it's my inflammed lung protruding from the rib cage / chest cavity??? I'm being referred to the Mayo Clinic to find out what's wrong (but, the appointments are over 6 months out). I'm miserable on a daily basis and would so welcome any insight you or anyone else may have. I will be sure to share any information I feel is relevant as well. Thanks!