Connie, I have something else to add. This isn't always the case with ALS but most often it is. There are always exceptions to any disease.

MG is a "head and down" disease because it usually starts with ptosis, neck or swallowing issues.

ALS is a "foot and up" disease because it usually starts with the feet.

I brought this up for two reasons. One, they should be doing an EMG on his lower legs to look for ALS. Two, the length this man has been ill should be a clue to them. If it was rather rapid, it is probably MG. Though some cases of ALS progress more rapidly, it's odd that the entire body is affected all at once like he has it.

Annie