Hi Lily,
Welcome to the forum.
You might want to post in the mental health section too.
here's the link to it-
http://neurotalk.psychcentral.com/forumdisplay.php?f=84

I should add that many of the more unusual conditions do get mis-diagnosed or even undiagnosed quite often. Especially ones that don't "show up" on any kind of visible test {like MRI, Xray, blood test, etc}

Did you get mis-diagnosed?
Did you finally get a correct diagnosis?