Thread: Tysabri Information and Check In part 2
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Old 07-21-2009, 07:51 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
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15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Hey everybody!
Hope everyone is doing well! I only have a few minutes but I wanted to update!

Tysabri # 28 on 7/14, went as usual- no problems, no concerns.

I packed up after the infusion and trotted off to parts unknown for a bluegrass festival and guess what? NO SALMONELLA this year!

I was able to hike up a giant hill repeatedly throughout the week without collapsing, even in the stifling heat and humidity and sun (something we haven't had much of in Maine yet this summer!) I am sunburned, worn out, should have scheduled better so I wouldn't have to work after driving all night to get home after the festival and have too much on my plate to even give justice to the rest of my life right now!

I noted some good stuff came out of Biogen and Elan the past week or so about re-myelination, PML treatment and other studies. When I get organized I will post further but you all can look them up or google them and read more.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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ewizabeth (07-21-2009), Grammie 2 3 (07-22-2009), Natalie8 (07-22-2009)