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Senior Member
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Hi Mel!
Yep! I had really bad problems with my hands b/4 the thymectomy. I couldn't EVEN move my fingers @ all to type- it was really scary! You may need an extra boost for now! Maybe your dr can up your pred or you can have IV IG or the other.
I have had tingly/numb fingers and feet for many years - waaaay back when I was in my early 20s.........I recently had a test done for neuropathy - it came back negative.....
I am so sorry to hear you are going through this! After your boost (if your dr allows) I bet you will feel 100% again! You have been sucha fighter - don't give up! It does get better! It really does!
Love,
Erin
Quote:
Originally Posted by rezmommy
I am unsure if this is related to MG or if I am dealing with something else. I have always had problems with my hands but it came and went. Occassionally I would have fingers that would feel numb or tingly.
Now my hands are constantly "numb". I have difficulty doing things with my hands. It feels as though I have no feeling in my hands. Putting barettes in my daughter's hair, washing the kids faces, applying my own make -up etc. etc. I could go on and on because it seems like I having a hard time now with ANYTHING that I have to use my hands.
I am really concerned about this because it does not improve with meds or rest. When I mentioned it to my neurologist he said that it sounded more like nerves than muscles but that is all he said. I had an EMG done on my right hand in April and it was normal.
I am really struggling with this. I have learned to adjust that I cannot do stairs and a lot of walking. I had the thymectomy in Feb. I take Azathioprine 100mg, Mestinon 300mg, Prednisone 5mg and Synthroid .075 mcg
I feel that my hands are progressively getting worse.
Any thoughts are appreciated. ~ Melanie 
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Erin .
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