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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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Hi Allen, I'm so sorry about you having Myasthenia. Is mestinon the only med you're on right now for it? My eyes do the same thing, but have improved much since being on treatment. Mestinon will cause sweating, and so will many of the other meds for mg. It's par for the course, and very annoying!!! So is having GI problems.
Many people have a cocktail of meds that we have to take in order to control the diseases effects on our eyes, and body. And really, it only controls them to a certain point.
I too live in Western New York. I found the story of your daughter's friend very interesting. A couple years ago, our local news paper did an article on me, and from that article I received a phone call from a lady who lives right down the road from me who was battling MG. I was floored as well. The chances of that happening weren't so high. So, I went down to her house, and we chatted. All I could think of, wow, how weird is this, here we are two people with a very rare disease sitting and talking in the same room. It was so odd.
Ask as many questions as you wish.
Best of wishes
Lizzie
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