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Member
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Join Date: Jul 2009
Location: Australia
Posts: 108
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Member
Join Date: Jul 2009
Location: Australia
Posts: 108
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Emotional stuff
Hi everyone,
I'm new here, I have no dx, but I'm finding myself in tears and nodding with recognition to some your daily experiences, symtoms and feelings.
Only had symptoms for 4 months (with a 1 month 'break'). Left arm and leg heavy/numb-ish. Can't walk far anymore. Pins & needles in hands and one foot. Ridiculous fatigue. Electrical 'pings' i call them - in my legs and behind my ear (?!). Immense pain in my leg for 20 seconds then it goes. Burning & buzzing. Very vague when i'm tired - that's embarrassing. Can't have baths anymore, can't get too hot in bed or I can't feel my hand at all.
It's emabarrassing at school pick-up time and people i sort-of-know ask me why am i limping. I feel dumb saying, "i don't know yet".... and it's been 4 months!
But all tests have been clear. (MRI. VER, bloods.)
My sister and aunt have MS. (some tell me it can mean I have a higher chance of having MS, some tell me it doesn't).
I am really scared. I remain positive though. I'm constantly searching for 'what else could this be?". I know MS can mimic 100 other conditions.
But when my neuro has done all she can and tells me to come back in November for my next MRI, I'm really scared! Why doesn't she look further into what else it could be?? She says, "MS is highly unlikely". so why stop looking?
I've been trying Chinese medicine and kinesiology which have their own theories of the 'emotions' behind the symptoms such as pins and needles and numbness.
They say it can be built up stress. (the last 4.5 years for me have entailed childbirth, then a yukky divorce, court stuff, and my Mum' death).
I guess after that long vent and ramble my question is, do you guys question the emotional stuff; the 'why', the 'what's behind this' from a deeper emotional perspective.
Obviosly I'm struggling with accepting there is a small chance i could have MS. But I think that's normal!
I have the book, "Why Not Me? - my journey with MS" on my bedside table but haven't read it yet. My sister says this book is inspiring.
I would like to hear other's thoughts if you'd be happy to share.
Michelle
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