Thread: feeling down
View Single Post
Old 07-24-2009, 05:29 PM
Burntmarshmallow's Avatar
Burntmarshmallow Burntmarshmallow is offline
Grand Magnate
 
Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
Burntmarshmallow Burntmarshmallow is offline
Grand Magnate
Burntmarshmallow's Avatar
 
Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
Default

I am sending low pain and comfort to all of you. Living with this is hard .It controls so many parts of our lives. what we can eat how hot it is , how hard is it to chew... the moving air on our faces the pressure with the weather and the temps... the bright sun light or light in genral the sensation of touch, kissing chewing talking brushing teeth, washing face,... the meds and their affect..... the list is so long it is not funny. not even mentioning how others act treat us. including doctors who sometime think we are looking for a fix ,an addict.
It takes quiet a bit of time to be able to deal with it all and learn to live with it, accept it as best we can ..yet all the while we hate the hell out of it each and every day. and we try to be the same person to everyone in our lifes. Try to hide it and play with our kids . we try to let other "in" try to explaine what its like, but most always No One really dose get it and after awhile one grows tired of trying to explain or tell. It dose stink ...that is using post friendly wording.
But I find the comforting side is being able to connect with others that are dealing with this. It is good to come here to Neuro Talk and be able to vent, ask questions, get info and find support make new friends be it they live in the computer... it is still good to connect and know your not alone.
lets all post one or two things we hate the most about T.N.
1.-- I hate how the cold affects me. cus it makes me a prisoner
2 I hate when a big storm comes and the pressure change . cus It takes me as its prisoner

Now your turn...



low pain and gentle hugs to everyone.
PEACE
BMW
Burntmarshmallow is offline   Reply With QuoteReply With Quote