We are looking for both kinds of material, but especially looking for the patient experience of diagnosis, both positive and negative, as it seems to vary widely, and can sometimes come swiftly, and other times take years. There will be threads that mention diagnosis directly, other posts may be embedded in threads about other things.........

Anybody is welcome to help with this research, if you come across mentions of diagnosis experience please post them here. It is a great way for you to contribute to the book project, and help the collective patient voice to be heard!

Lindy