No, I've never seen a movement disorders specialist yet -- I'm expecting an update from my NIH neurogeneticist soon, so maybe he'll recommend this as my next step. So far, all I've been focusing on is Ataxia specialists, since I was given the "SCA, type unknown" dx back in 2005. Thanks so much for the idea, though!

Take care,

P.S. Johns Hopkins, you say?! They have a fabulous Ataxia center down there, under Dr. Joe Savitt. I'm not a patient there, but I attended one of their support group meetings last month. Anyway, I'm sure that the two groups work closely together (that is, Ataxia and Movement Disorders), since hereditary Ataxia is a type of movement disorder...

P.S.S. Where in PA do you live, if you don't mind my asking?