Quote:
Originally Posted by Pat 110
Hi Kathy,
Welcome to the group! I too agree you were diagnosed very fast...good for you! It took me 2 years, which is still rather fast compared to many here. I have both ocular & general and had a thymectomy in Nov. 02. I take only mestinon, but may reluctantly starting pred soon...haven't decided yet. The twitching you mentioned is a common side effect of the mestinon. Mention this to your neuro the next time you see or speak with him. Feel free to ask any questions you may have. Everyone here is very supportive and helpful. Take care. 
Hugs,
Pat |
Thanks, Pat, Cricket and Joanmarie for the warm welcome. I almost hesitated posting since my symptoms are so minor compared to others suffering from MG.
A question concerning Mestinon. I'm supposed to take it 3 times a day. I was taking with meals, but noticed my eye was acting up when I got up in the morning (maybe because it had been since dinner the night before when I took my last pill). Yesterday and today I am taking them 8 hours apart to see if things are better in the morning.
I'm beginning to see living with MG is all about seeing what "works" and making adaptations. I had already learned before starting meds that tilting my head when watching TV helped, as well as closing my right eye. Have also found that looking downward such as when cooking, laptop compupter vs. desktop monitor helps a lot.
Kathy