My mom suffers from TN. She's tried Lyrica, Neuronin, and Tegretol. Tegretol was the most recent and the side effects were so bad at 200 mg that after a week she said she physically couldn't take it anymore, so she stopped the Tegretol. She was getting no relief from the meds. She has a very high sensitivity to medications, in general, so it's no surprise that this is an issue.

I try to be there for her as much as I can; I'm 29 and live on my own-although only 30 min away. But I just wish there was more that I can do.

I'm hoping I can get her to register on this site for some support from people who have experienced TN; I feel like it might be real theraputic for her! She's very down, and at her wits end. This "episode" has lasted several months without letting up, and she's saying that she keeps having to think about me and my brother to give her strength to even go on.

Anyone have any advice on meds? Any known meds out there that have lower side effects?

Also, does anyone have any experience with TN in the Shreveport, LA area? I really wish she could find a neuro dr in this area that was familiar with TN, instead of diagnosing her out of his book.

I think its so great that this site exists; God bless you all. You might see me around more

-Jessica-