Quote:
Originally Posted by KathyV
Thanks, Pat, Cricket and Joanmarie for the warm welcome. I almost hesitated posting since my symptoms are so minor compared to others suffering from MG.
A question concerning Mestinon. I'm supposed to take it 3 times a day. I was taking with meals, but noticed my eye was acting up when I got up in the morning (maybe because it had been since dinner the night before when I took my last pill). Yesterday and today I am taking them 8 hours apart to see if things are better in the morning.
I'm beginning to see living with MG is all about seeing what "works" and making adaptations. I had already learned before starting meds that tilting my head when watching TV helped, as well as closing my right eye. Have also found that looking downward such as when cooking, laptop compupter vs. desktop monitor helps a lot.
Kathy
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Hey Kathy,
All the things you are learning, we did too. You will learn more as you go along. As far as the mestinon goes. I would call my neuro and let him know what you wrote here. He may increase it by one more a day or prescribe a time release at bed time. Please don't increase it on your own. Too much mestinon will make your symptoms worse. It's good that you take it after a meal. If you have stomach issues it helps a lot. I am so glad you decided to post. Everyone here has varying degrees and symptoms of MG. Always feel free to ask any questions and someone here will be more than happy to answer them. Looking forward to hearing from you more. Take care.
Hugs,
Pat