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Old 07-27-2009, 01:39 PM
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erinhermes erinhermes is offline
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Join Date: Jul 2008
Location: San Antonio
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15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Heart Yes! Yes! Yes!

Hi Rach! Yes, I have noticed that the use of any of my muscles, I have ptosis.......Don't know why!

Hope this helps!
Love,
Erin







Quote:
Originally Posted by rach73 View Post
Hi Everyone,

This may seem a little left field, but I was having a discussion with one of my now many MG friends who I have made through forums like these. We were discussing my ptosis, my friend has a wealth of medical knowledge. I happened to mention that I had cleaned my bathroom and my eye had shut.

She quite rightly pointed out that this according to modern ( I use this term losely) neurology shouldn't happen with MG. Accepted medical theory is the muscle only should fatigue on usage. So ptosis should only occur if I was reading, driving or watching the TV. She pointed out though that Mary Walker the lady that did the stuff with neostigmine in the 1930's I believe, did find that even if you didn't use the muscle all muscles could become fatigued- particularly with respect to ptosis.

Does anyone else out there find different muscles fatigue to the ones that have been used. Eg walking making you have ptosis?

Its just out of interest. I have never been asked what causes my ptosis by my neurologist.......but then its all in my head isn't it (just point out I was being sarcastic there!)

Look forward to your replies!
Love
Rach
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