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Old 07-27-2009, 05:20 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Allen, Here is an excerpt from something I'm writing (so it's copyrighted). Maybe this will help them to understand. That plus the fact that you can't do too much or your condition will become worse and you won't even be able to do the things you like.

You could always ask your "girly" friend if he would want you to give up being able to see just so he would be happy again.

This is a "guy" metaphor, so maybe it'll help.

"Have you ever tried to drive to work with only a gallon of gas in your car? You may make it there but you may not make it back home again. That is kind of what a day with MG is like. Acetylcholine is the gas that makes everyone’s muscles work well and stay strong. Most “normal” people have a full tank of muscle gas all day long. If you have MG, however, you don’t really know how much gas you have for any particular day. That muscle energy could run out at any time during the day and your muscles won’t “go” any more. The only way to get muscles stronger again is to rest or take pretty awful drugs like steroids. Every activity, such as walking, talking, eating, swallowing, smiling, lifting and breathing, is adversely affected by this lack of muscle fuel. Imagine eating a meal and having to stop halfway through because your swallowing muscles are too weak to work anymore. That’s life with MG."

Annie

In an effort to be sympathetic . . . it is fairly difficult for people who love you to not be able to see you as much or do as much with you. Maybe you can come up with some kind of compromise. Like watching TV together while you work on your projects.

Last edited by AnnieB3; 07-27-2009 at 05:57 PM.
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