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Originally Posted by shandi
I went to my son's 5th grade graduation and It hit me so hard to think back and realize all the school trips and school activities I have missed because of the pain with RSD, I just broke down and cried. Now he is growing up so fast and I can never go back to have the memories and nor will he having his mother by his side when other parents was always involved in everything with their child. I beat myself up about this and have tried to explain to my son why I wasn't there and I was so sorry and he replies it's ok mom , When I know it hurt him. I hope I will get a chance one day to try to make it up to him and hope he doesn't remember when he is older my mom never went any were with him. We have to miss out on so much in our lives living with RSD and it's even worse when others doesn't understand the pain with RSD and how it affects our lives. Shandi
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Shandi, I know exactly how you feel. I know it affects my entire family, but I think it’s especially hard on the younger ones. My youngest son, he’s 7, he calls me his ‘best friend’. For being only 7, he’s very aware of my leg/foot being in pain all the time. When he draws pictures in school he draws me either laying down or with a cane in my hands, I guess this bothers me more than it does him. One day he asked me how come I can’t be like other dads?... able to play ball or go to a function at his school (innocently pulling my heart strings...). A few weeks ago he was upset, we have a picture frame hanging on the wall with pictures from Disney World from about 15 years ago, he told me that he won’t be able to go because I can’t go because of my leg(ugh…….). And to top it off, he pointed to one of the Disney pictures & said ‘I want you the be the same’ I lost it…. The ‘mental pain’, a lot of times, is harder to deal with than the physical pain. Enough about me, hope everyone else is having a better day than me. Pain free days to ALL.