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Old 07-28-2009, 08:45 AM
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,432
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,432
15 yr Member
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Quote:
Originally Posted by diagnonsense View Post
I switched to this female neurologist because I was told that she was less of an *** then the rest of the neuro's in my city. (as told to me by my GP)

However, I am finding her to have this attitude of unless you are in a wheelchair or getting there take a backseat.
She is too busy for you or your problems.

She says the clinic will call me to schedule something, and they don't.
She says they will call me with results of studies, and they don't.

In the mean time my symptoms bother me.. my hands, and feet go numb.
Today my mouth even went numb.

She tries to BLAME ME for my neuropathy.. since she can't find anything in certain testing.
First she said my sitting with my legs crossed was worstening my neuropathy.
YEAH LADY.. my sitting like this gave me a neuropathy?

THEN.. last week my weight was down, and she said that my eating habits caused my neuropathy.
So first its the way I sit, and now its eating habits.
.. I've already been tested for nutrition related neuropathy.
But she decided to WASTE my insurance, and re-run the same damn tests!

I'm really getting P.O.'d with this neurologist who seems to be making me wait around on her, and her blaming me.
And her seeming to treat me like my problems are insignificant.

I'd like her to go through several days with her limbs going numb.. her face going numb.
See how much she likes it.

So, at what point to I say "SCREW YOU" and find a different neurologist?
I'm considering going back to Mayo clinic or something. .. because the doctors here clearly have no clue.

Have you never had DNA blood testing for HNPP? Here is a site for HNPP: http://www.hnpp.org/hnpp_symptoms.htm

The thing you mention about when you cross your legs and they go numb, for example, makes a person wonder. HNPP is the opposite of CMT1A.
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