Like Aarcyn, I have only been on IV steroids 2 times in the past 3 years. In fact, I have only been on IV steroids twice since being diagnosed 3 1/2 years ago. I did not notice a decrease in symptoms right away. It still took a while for the symptoms to calm down.

I don't have the internal theromstat issue so I have no advice for you on that. The sensory issues I do have and for me, the Neurontin helps that for the most part. However, I have burnt my left hand/arm several times without feeling it and had a big delay in the message reaching the correct part of my brain. I can't feel hot/cold accurately with my left arm/hand (but I can definitely feel a pin prick).