Another thing that I just thought of - When Ellie was 3 months old, she had a blood transfusion and responded amazingly well to it. I am curious how this has affected her issues right now. She was such a healthy girl for the first 2 years of her life. After she was 2, things changed starting with ear infections (she now has tubes) and then stomachaches, constipation, failure to thrive.

It makes you wonder what the heck was going on with her blood those first 2 years and if the blood transfusion did make a difference - postponing the inevitable maybe. Kind of like that IVIG therapy that the neurologist wanted to do on Michael.

Here is a question for the medical community - an IgA deficient person is also deficient in IgG, therefore making the serum tests ineffective for dx of CD - so why wouldn't the same be said for an extremely low IgA figure (someone 0.05 away from dx with IgA deficiency) - wouldn't the same guidelines apply when it comes to the IgG levels and therefore making the test ineffective for dx? You would think so. It is not cut and dry with the numbers as they would like you to believe.