Hi Mary and welcome to NeuroTalk. I'm sorry you are suffering so and without answers. Here is the link to our TN forum..
http://neurotalk.psychcentral.com/forum26.html
We have a Chronic Pain forum that you might ck out...
http://neurotalk.psychcentral.com/forum10.html
also a General Health and Rare Disorders Forum...
http://neurotalk.psychcentral.com/forum2.html
You'll find a lot of support here.