I am so sorry you are having such a hard time right now. I did not have a thynoma but I still had my thymus removed and it put me in remission for 17 years. I was bad at that time, couldn't even feed or hold my newborn son. There is hope, if you have ins. then talk to your Dr. about the thymectomy, like I said, it put me into a very long remission, drug free remission. Please keep us updated and feel free to rant anytime, we all do it because we know only we really understand what each of us is going through.