Hi Mary and welcome to NeuroTalk. I'm sorry you're going through so much. I used to take Neurontin, too, and I gained about 20# while on it. Luckily, a med change made it possible for me to completely go off of it. As if MS didn't make me feel bad enough......20 extra pounds certainly didn't either!
I see Alffe gave you some great link to forums that might be of help to you. Join in anywhere you feel comfortable and let us know if we can help you in any way.