Trishann, I've got several things going on with this. My GP has already told me of several things that he says are related to PN. I've got it in my feet, ankles, hands, lower legs, and then I get episodes in my upper legs. Its confusing and I've already seen one neuro who didn't help or explain anything at all. Having to wait and wonder is hard on me. I'm sorry your in limbo too. Have you got a doctor or appointment in the near future?