Quote:
Originally Posted by cindi1965
Hi, I am new to the board, but was diagnosed with RSD last year after having a severe staph infection. I am sooo glad I found this forum because it makes me feel like I ma not going crazy. I have been to so many doctors that just keep testing me for this and for that after my GP referred me for RSD. I have been treated so badly by doctors that I am very leery about going to anyone for tests. I also have mild cerebral palsy and I actually have had doctors tell me that I didn't look like I have CP. I have had it since birth and had surgeries to correct my walking. I have RSD in my left leg, which used to be my strong one and it is slowly but surely spreading to my right leg and right arm. I am on Lexapro, Xanax,Amitriptiline,Vicobrofen,and Baclofen. I can't take any of the seizure meds and Topamax made my eyes swell shut. So, they are trying to regulate the meds that I am already on. My pain doctor is hesitant at giving me the pain blocks because of my CP. Thanks for listening and I look forward to reading everyone's stories. My family also thanks you because this forum has helped me soo much 
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Hi
I was just diagnosed last year also, so I am new here too. The people here are the best, and I have learned so much. This forum has made a huge difference for me, too, without it I would be lost.
You are NOT going crazy. Try to find the best medical center you can, perhaps a teaching hospital in a large city near you. Acqua therapy for your leg might be really helpful, too - do you have a good PT?
Wishing you the very best, Sandy