Kitt- Nope, I haven't been tested for HNPP.

Thank you everyone for your responses.

Today I decided to call my neurologists office and ask for a referral back to Mayo.
Although there is a wait to get in, at least I feel the people there know about PN, and are experts in all sorts of things, and its the best place for me to be.

>> and while on the phone with the nurse asking for that referral she was talking about the labs that they drew back on the 15th.. she said they came back normal.
DUH. They were normal the first time I had them done as well.

Even if they just want to run a nerve biopsy on me at mayo, at least I feel they are qualified enough to ask for it.
The people here are running around in the dark.