Quote:
Originally Posted by DejaVu
Hi jackie66!
I appreciate your efforts to bring this topic up for discussion! 
Although not a pleasant topic, it is a very important topic!
Actually, more drugs/drug categories than those listed have the potential for neurotoxicity! The numbers of drugs with the potenital for neurotoxicity are astounding! 
I am of the opinion that "informed consent" is no longer a concern for many of the people prescribing and/or dispensing medications. I remember when informed consent was considered a very important aspect of treatment.
Since those prescribing are getting away with not granting patients the opportunity for fully informed consent (by the prescriber), I also wonder if patients understand the importance of exercising their rights to have comepletely informed consent? I tend to think that if enough of us demand fully "informed consent," it may again become considered an important aspect of treatment by doctors, legislators, health care admin., etc.
The necessary reform around issues regarding fully "informed consent" is long over due.
People are paying a very steep price for the lack of this extremely important portion of their healthcare information.
I agree with mrsD on suggesting you look into some of the known methods for enhancing mitochondrial functioning. She has suggested three very powerful supplements now often mentioned in the mitochondrial support literature. These (and other) supplements may be very helpful to some people suffering mitochondrial damage/dysfunction/deficiency.
Jackie, please also always review for any potential adverse reactions/interactions when considering any form of treatment/supplementation. 
Mia has left a note for that has touched my heart, as she recognizes the very serious damage often suffered by those under the care of someone with Munchausens by Proxy. I, too, am very sorry you have suffered and hope you can find help in minimizing future suffering.
Jackie, I am very touched by your motivations to find some answers for yourself, as well as your motivation to share important information with others! I am grateful to you!  |
I have looked into Mitochondria and the supplements suggested. The main problem for me is that I was suffering from two items, both of which can cause truncal ataxia.
First, the antiepileptic drugs. They are known to cause liver problems especially the Sodium Valproate. The monitoring of my drug usage was very poor indeed. This was due to the Doctors not knowing what they were actually monitoring. In all my years taking these quite unnecessary drugs I only had 3 or 4 blood tests done. No Doctor ever noticed that I could not sit unsupported either.
The recent visit to a Doctor who actually knew about ataxia was beneficial in that he actually LOOKED for vitamin E deficiency. There is no real way of actually finding out just how long I have been E deficient. I am, however, aware that the E suppliment that I now take IS doing good. This Doctor, I am sure, would have suggested other items such as CoQ-10 if he thought they might do good. He does actually prescribe that to some of his patients. Nothing is going to help the paralysis though