Quote:
Originally Posted by KathyV
Hey Nick,
New member here. I'm glad your surgery is behind you and hopefully the pain is less and less each day.
I've read your surgery experience several times now. I was diagnosed with MG two weeks ago and just heard from my neuro's office that my CT scan results showed a 4cm growth on thymus, or maybe the thymus is 4cm. All I remember hearing is 4cm! Have to go back to the neuro on August 19 to talk next steps. Last week he put me on Pred and Mestinon and I've been on those for a week now which has really helped with the double vision and droopy eyelid -- my only symptoms. I was so hoping that the CT scan would show nothing. 
I read your profile and you are so young. I feel like an old-timer -- almost 57 year old female.
I'm sending good thoughts your way. 
Kathy |
Hey Kathy,
I am sorry to hear about your CT results. Don't you just love how they give you the results and then you have to anxiously wait 3 weeks to discuss them with the Dr. I too am 57 and had my thymectomy in 02 when I was 50. My MG started with just ocular, but within a year I had general as well...all before I was diagnosed. Try not to get too stressed out...easier said then done. It will make your MG symptoms worse. Just hang in there and know we are all pulling for you and are here for you. Take care.
Hugs,
Pat