View Single Post
Old 07-29-2009, 07:54 PM
maryam71 maryam71 is offline
Junior Member
 
Join Date: Jul 2009
Posts: 6
15 yr Member
maryam71 maryam71 is offline
Junior Member
 
Join Date: Jul 2009
Posts: 6
15 yr Member
Default

Quote:
Originally Posted by momzpeachy View Post
I am getting concerned..along with my Doctor's. They are seeing VERy rapid progression with me and it's getting kinda scary. THe Doctors believe I've had RSD for about 2 years now but things are changing for the worse now and very fast. The burning pain never stops and it has spread. I have full body RSD and I have trouble with internal organs now as well. They are really concerned and quite interested in me because everything has now been affected by this terrible disease. The burning pain is getting worse by the week and I have more trouble sleeping and eating which keeps getting worse. My memory and concentration is just awful and my vision keeps changing. My vision has changed now 4 times in less than a year! I am losing sight in my right eye and the eye lid is swollen and looks droopy. My vision is blurry most of the time and glasses are pretty much worthless. I see the same with or without them.

What's getting really scary now is that I'm losing function of my right hand. It's swollen most of the time and I can't even close my hand to make a fist. I can't pick up an empty soda can with it most of the time. I am now having trouble walking, especially when I'm in a huge flare. I have awful spasms, legs feel weak and my knees will just give out on me at times. I have a hard time getting up steps. I'm falling apart and I'm scared.

I'm just curious if any others progressed rapidly and were you able to slow it down? I tried a bath last night to help relax and then I didn't sleep all night. UGG!

Is there any relief?
well i only had my rsd for 2 months now im in the late stage of rsd my calf muscle is gone both my knees are very weak my hip is weaker because i had a bad fall that does not make things better its hard for me to walk around with my crutches i have rsd in my left foot i had 3 surgeries i had spasms riight after surgery it was so bad they had 2 put me in the hospital now my calf muscle waisted away so i cant feel the spasm in my leg any more but my big toe gets spasm still i feel like im cripple im 37 and i feel as if im 75 i cant leave the house without help my kids have to go with me every where i go i feel like i am a small child this rsd has me as a prisoner and i want to be free this
maryam71 is offline   Reply With QuoteReply With Quote