Hi aprilfools,
I am one who has been on 3600 mg of Neurontin when I was in relapse and everything would worsen on me, so I needed the extra boost. I weaned back down to 2400 mg or even 1800 mg when the relapse was over, in a few months.

I had been on it since 2001, starting dose with 100 mg at night. I was told to increase it if I felt it was helping with sensory symptoms, it did. The draw back was feeling dopey in the day, so I took it at night in the beginning.

I knew when my body wanted it, it is addictive too, IMO. When it didn't seem like it was helping anymore I increased it, with doctors orders, to get control of all the weird sensory feelings (things I felt and the doctor could not see.)

Numbness, MS hug, buzzing, wet pant leg feeling, shocks, and more. I had to increase it to get the sensory feelings to go away. The years past and the amount was high, and it just stopped working. He tried to switch me to Lyrica, but I felt worse on it, I don't know why, because it helps many people, but not me though.

So after the 6 years on it, I gave up and weaned myslef downward and off. It took almost a year to do that. My body was craving it, really. So slow was the way I had to do it. I was not on Valium, never tried it ever.

I just looked at all the drugs I have taken over the years and decided, this is crazy. Why so many? Are they helping or causing more problems that need more medication to remedy?

So I went off everything. At least I am not doped up in the day any more or have a drughangover in the morning. Not waking up feeling refreshed because I pop more pills when I wake and I got dopey or brain fogg, and cognitive issues, more than I needed to add to my slight cognitive issues I already have.

Any changes you make in medication, you should consult your doctor first. You might be given them for other purposes than I took them for.
Maybe this helps you or others, I don't know. It is just my thoughts on this.

BTW, I never gained an once on Neurontin, we are all different.

I gained weight when I worked, with the stress I popped junk food all day. Then I lost it over the years by not buying junk food. Chocolate isn't junk is it? My one love. Dark chocolate. But in moderation.