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Old 07-29-2009, 11:19 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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I didn't post it or comment on the last case reported because I was away.

Biogen said in their AGM that they would be providing updates in their quarterly reports. As I understand it, further information will be available to neurologists and rheumatologists. They just have to request it.

If your doctor doesn't have updated facts on PML cases, or hasn't discussed the facts with you at your regular appointments, you need to let them know that you want all the information at hand when you see them. I have an excellent neuro, but I've had to help him to help me a few times .

I see him every three months and he makes sure if I call in between, that he gets the answers to my questions. He keeps up on the available known information on treatment of PML cases. He and I both made sure that the radiologist was aware and up to speed on PML imaging.

Information will be out there. We just have to keep looking and make educated guesses with what we have available, and remember that our guesses are just that, since correct information will eventually be available after it is studied and dissected by the bigheads.

Like every other drug out there, this one went through the studies required by the FDA. In addition, it was studied more than any other drug when it was withdrawn. It is the second drug EVER to be returned to market after withdrawal. It continues to be scrutinized more than any other drug on the market. Between scientists, doctors, patients, investors, statisticians, analysts both financial and scientifically oriented, and the drug companies themselves, along with the internet, there's very little hidden about what's happening with this drug.

The best part of the whole giant blob of Tysabri, it's history and information is that for me, it works. I am sticking with it.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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