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Old 07-30-2009, 05:18 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Well, that bites.

Doctors do not like to go against the opinion of other doctors, even if the first doctor is wrong. Which is really a shame since so many of them are apparently wrong when it comes to MG. I'm not saying there aren't great doctors out there by why can't anyone see that you have a serious problem? Oxygen stats going as low as yours do are NOT NORMAL. Holding your breath, my bottom (I has the English version of that word but it got bleeped. Rhymes with farce.).

I'm really sorry if I gave you false hope about Dr. Vincent. She was so decent with me.

Maybe if you make a short list of what has been abnormal, like the O2 stats, the ptosis, etc. How can they ignore all of this? I'm with you Erin, I'm numb.

Rach, Do you have to go to France, where the docs there LOVE to show up the English docs, to get some help? Intitute De Myologie is the place.

http://www.institut-myologie.org/anglais/index.php

http://www.institut-myologie.org/ewb...esentation.php

Professeur Bruno Eymard does the clinical work there. They do have socialized medicine too. You know how the French and English like to one-up each other!

Do NOT give up hope on getting help. What is going on with you is not normal.

Annie
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